Welcome to Thursday Doors, a weekly feature allowing door lovers to come together to admire and share their favorite door photos from around the world. Feel free to join in on the fun by creating your own Thursday Doors post each week and then sharing your link in the comments below, anytime between 12:01 am Thursday morning and Saturday noon (North American eastern time).
My son, Michael, has struggled with his health his whole life. At three weeks old he stopped breathing and went blue, I rushed him to the hospital emergency room and he was diagnosed with bronchiolitis and admitted into hospital for three days. He spent this time in an oxygen tent.
At his six week checkup, the pediatrician said she had never seen a baby with such narrow nasal passages. “I couldn’t fit a pin into his nasal passages,” is what she said. I’ve never forgotten that. I had spent the three weeks after his discharge from hospital nebulising him every 2 hours for 45 minutes. It was a killer and I was exhausted. I was also breast feeding because I was told I must to give my baby the best chance possible.
These three weeks set the tone for Michael’s life. He had bronchitis four times in his second year and was admitted to hospital each time for oxygen and treatment. At nine months he started with a series of eye infections. I took him everywhere, from the GP, to the pediatrician and even to an ophthalmologist. No-one could fathom out what was wrong and this continued until he was six years old.
Michael missed 25 days of school during his first year of school. The third ENT we visited, consulted with two of his colleagues, and they established that his left ostium (the opening through which your sinuses drain into your nose) didn’t exist so there was no drainage happening. The lack of drainage over his life and caused the eye infections as infected mucus tried to escape through the thin bone of the sinus wall. He had developed a biofilm which is a drug resistant bacteria.
He had the first sinus operation and the ostium was opened. He was given a sinus douche to wash away the mucus containing the biofilm. For the past 9 years we have had one sinus infection after another, despite all the treatments and five sinus wash outs.
Michael is also a chronic asthmatic. He has brittle asthma which means it isn’t well controlled by medication.
This year, Michael’s health became poor again. He saw a new ENT who put him on a new treatment plan in an effort to improve his sinus infections without surgery. He also saw a new pulmonologist. The new asthma treatments worked well, but the sinus treatments did not.
Two weeks ago, he was sent for [another] CT scan. This time they did a top down scan. They discovered that Michael never developed upper sinuses. His lower sinuses are catacombed with bone with no drainage, so his functional sinuses were very small. There was also something going on in the left lower sinus, some sort of blockage.
An operation was booked for Wednesday this week. The doctor would do a biopsy of the lungs to check for cystic fibrosis, check for an aspirin allergy, and try and sort out the blockage and straighten his septum (cartilage and bone in your nose).
The good news is the operational from a reconstruction point of view was a success and his sinuses will be more functional going forward. The bad news is the operation went a bit pear shaped.
The ENT encountered significant scar tissue in Michael’s sinuses. This was the blockage that showed on the CT scan. His septum was pushed over to the extreme right because of the scar tissue mass. When this was removed, his nose bled excessively and nose plugs had to be inserted to stem the bleeding.
When the anesthetist starting bring Michael out from under anesthetic, he panicked. Reaching up, he ripped the oxygen tube allowing him to breath out of his throat. He wasn’t ready to breath on his own, so he didn’t breath. The anesthetist couldn’t get an oxygen mask onto Michael (he was struggling and is a big strong lad) so they had to put him back under and re-insert the oxygen pipe.
I was called to come to recovery, not that I could do much other than stick my head in and try to calm him from the door. We are still in ‘covid’.
This is a double whammy problem. He had additional anesthetic which his system struggled to handle, and he bruised his trachea as the oxygen pipe was still inflated when he pulled it out.
When he came back to the ward, he was covered in blood, had nose plugs in, and was struggling to breath. The nurse checked his vital and his oxygen levels were 78 and dropping. All hell broke lose as four nurses rushed around getting him onto oxygen and checking his heart rate which was over 128 bpm.
It was very unexpected and alarming. I felt useless and in the way of the nurses. I was hovering in a corner, worried sick. I was on my own as Terence was at a client meeting.
Thankfully, Michael’s pulmonologist entered the fray and he was quickly moved to High Care and received prompt and appropriate treatment. He came out of High Care late yesterday and is doing better today. He is breathing on his own and his heart rate has stabilized.
This is why I am behind with reading all your lovely posts and slower responding to comments. Poor Greg’s needs got dropped completely and I didn’t attend his teacher feedback sessions.
He is improving and will be fine. Treatment was sufficiently prompt to cause no long-term issues.
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Oh, I hope he recovers soon. Perhaps mention dacryorhinocystostomies (DCR) to his consultant? I’ve had 2 and my left eye (done externally so a small scar) is normal now, but the right one (done via the nose) wasn’t so good. An external DCR might help?
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Hi Stevie, thank you, I’ll ask the doctor when we see her next week.
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Actually it’s dacryocystorhinostomies. I’m in too much of a hurry …
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I’m so sorry, Robbie. I hope he’ll be okay.
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Thank you, Andrew
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You’re welcome.
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Robbie, my heart goes out to you and Michael. I was glad for you all that long term things will be fine. This recap is so very detailed and helpful to understand the Michael’s struggles. You are a strong woman and mom. Prayers to you all to continue down the healing road to long term health. Hugs.
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HI Rox, thank you for your kind comment. I needed to get this off my chest.
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Robbie, what a terrible ordeal you’ve all been through, not just over the last couple of weeks but for a very long time. I’m so glad Michael is recovering well and should do better in the future. Forget all about blogging for the moment. We’ll still be here when you come back. Sending you healing hugs, Toni x
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HI Toni, thank you. He is doing much better today which is a relief. I really hope that this operation will be worth it and make a difference.
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Absolutely. Blogging can wait.
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Hi Liz, Michael is doing better today and is out of danger. It was a very stressful time; not being able to breath is very frightening for everyone involved. He still has a lot of swelling in his throat and can’t talk much or eat hard foods, but he is breathing well on his own.
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That’s a relief!
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I’m so sorry to hear what all Michael has experienced with his health. I’ll keep him in my prayers that he continues to recover. I know this is difficult for you. xo
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Thank you, Jill. It has been difficult and I feel very helpless to make it better.
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I am lost for words after reading that! How absolutely frightening for you and your son and then the rest of your family once they knew–but you lived it and saw it in horrifying, vivid detail. I hope Michael recovers fully from his ordeal and you can put it behind you as well, Robbie. My thoughts go out to you.
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HI Danny, it was rather dreadful. This is the third time Michael has stopped breathing and it is very frightening for everyone, including the poor nurses. Thank you for your kind message of support. Hugs.
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Oh Robbie, you poor thing, hopefully things will get better now.
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Hi Rosie, Michael is out of danger and breathing well on his own. He is on his way to recovering. Thank you for your kind message.
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Oh Robbie, how upsetting. Such a roller coaster of events, all in one day. I am glad that your son’s long-term prognosis is good, but I feel for all that you and your family have gone through. I hope Michael is feeling better and that it won’t be long before he goes home. 🧡
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Hi Barbara, Michael is doing much better today. Kids recover much quicker than we do. He can’t talk or eat much, but his breathing well on his own. I hope this operation makes a difference and his life will be better going forward.
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I wish I could push a “care” button instead of a like button, Robbie. I know the difficulty/fear/panic all of this must have caused you and your husband. Nothing worse than seeing one of our children suffer. You write about it so well, I was holding my breath the entire post. I’m glad that all in all they think the surgery was successful. Now on to the healing. We all send much love. xo ❤
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Hi Pam, thank you for your support and thoughts. Michael is doing better and, thankfully, kids of his age recover much quicker than we do. I am really hoping that this operation will help him and improve his quality of life. It is awful being helpless and in the way.
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As parents we want to take on our children’s discomfort. But you have done everything for him possible-as have the doctors – and with your love he will heal quickly!
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Oh my goodness, Robbie, what a nightmare for Michael and for you. Don’t worry about catching up with us. Take care of yourself and your son. We will keep you and Michael in our prayers.
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Hi Dan, I am sitting here next to him while he rests. When you are sick you sleep a great deal. High Care is horrible because there is a nurse doing something all the time and I felt completely in the way but compelled to stay in case something went wrong. He is doing much better now and I am very grateful.
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Oh, Robbie, I am so sorry to read of Michael’s health struggles. I hope this latest treatment will soon put him on the road to good health. Please take good care of yourself as well.
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Hi Liz, thank you. I was a wreck on Wednesday and hardly slept at all, but yesterday wasn’t as bad. Today, he is looking better, the bleeding has more or less stopped, and he is breathing. I really hope this operation will be worth it.
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I don’t blame you. The poor kid has been through enough.
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Oh Robbie, what a stressful situation. Thank goodness Michael seems to be recovering, and also, that the true problem was (hopefully) finally found and taken care of. The human body is still a mystery in many ways.
And yes, do tend to your own needs as well. We can wait. (K)
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Hi Kerfe, Michael is doing better today and is sleeping a lot so I am able to relax a bit. Thank you for your supportive message. I hope this operation will make all the difference. Scar tissue can come back so I’m praying for the best outcome.
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I’m glad he’s doing better. I’ll keep him and your family in my thoughts.
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A terrifying experience for you and Michael. Complex ongoing health issues must be a minefield for family and doctors. Take a rest from blogging, we won’t expect you to keep up your normal pace Robbie. Best wishes for Michael.
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Thank you, Janet. Today is much better and Michael is sleeping a lot so I can relax a bit. Wed and Thurs were horrible and stressful.
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Good grief, Robbie. I can only imagine what you are going through. Both of my children had life-threatening health issues but moved past it–not gone but in remission. I can’t imagine the stress of never getting a break, always something new. My prayers and wishes go out to you.
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Hi Jacqui, I didn’t know that about your children and I am so sorry. Both my children have chronic health conditions but Greg’s has become very manageable over the past 2 years. Michael is lying here asleep so I can relax a bit and do some blogging.
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I just know everything will work out, Robbie.
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Keeping you and your lovely family surrounded in the healing light of Spirit! I know everything will work out better than anyone ever expected!
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Hi Annette, he is doing better and sleeping peacefully now. I am often told that God’s only sends us what we can handle, but I do hope Michael’s health will improve after this operation. Hugs
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wow – I am so sorry to hear about the health issues Michael has had from the get-go. I certainly hope this latest operation will provide him with some relief. I am guessing that COVID has been a scary time for all of you given his breathing issues. Best wishes to Michael and your family moving forward…
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Hi Jim, yes, we were told that Michael must not get covid and we have been very careful. My dad was also very sick so we had a lot to worry about over the covid period. Michael is sleeping now and breathing normally [well, his normal]. Hopefully when the swelling in his nose goes and the stiches are gone, he will be able to breath through his nose, something he has never been able to do.
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fingers crossed that he will be able to breathe through his nose; I am sure that would be an amazing feeling for Michael…
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I’m so sorry for Michael and your challenges. Praying for a complete recovery.
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Thank you, John. I am hoping his problems will be greatly improved. We will get the results of the cystic fibrosis test in 2 weeks time.
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Hoping for the best.
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Oh my goodness, Robbie. You described a parent’s nightmare. Prayers for Michael that he recovers quickly and completely! Hugs!
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Hi Jan, I was in quite a panic on Wednesday when he couldn’t breath. It was a difficult two days, but today has been better. Luckily, the intervention was quick so there is not permanent damage.
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Dear Robbie, What a nightmare for you both! Any mother would understand the trauma you’ve both been through. Thinking of you and wishing for a healing future. Take care of yourself too! Hugs xx
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Hi Joy, thank you for your kind words. He is on the mend today and is breathing relatively normally but through his mouth as always. I am hoping he will be able to breath through his nose after this. Have a lovely weekend.
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Thank goodness for that Robbie! Everything crossed. Have a better and good weekend too. Hugs xx
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Love to Micheal. He’s going to be fine, Robbie. Prayers blessings hugs sent to you.
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Thank you so much, dear Yassy.
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Always welcome 🤗
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I can only imagine the nightmare you have gone through, Robbie. My second wife had to have an operation on a deviated and scarred septum that caused her breathing and snoring issues. She had an awful time of it, and the worst thing was that it didn’t solve her problem in the long term.
Best wishes, Pete.
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Oh dear, it is unfortunate that your wife’s operation wasn’t successful. I hope that this will at least improve Michael’s breathing and continuous sinus infections and ill health. Thank you, Pete.
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Robbie, first of all, thank you for sharing…I am so sorry that your son had had these medical issues his entire life…something most of us can thankfully take for granted…he is SO SO SO lucky to have you there for him every step of the way…bravo to you and wishing you both the best going forward in recovery
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Hi John, thank you so much. Michael has a tough time of it, but the ENT seems optimistic that this operation will help him long-term. That would make it all worthwhile. He is doing even better today, young people rally quickly. Have a great weekend.
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My dear friend, you are the most amazing mother and you have the most amazing son. Your journey is not for the faint of heart. My thoughts and prayers continue. Sending many hugs!
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Hi Rebecca, Michael has had a tough time of it, but if this operation has been successful, which the ENT is confident it has been, his quality of life will be much better. Thank you for your lovely message, Rebecca. Hugs.
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What a nightmare. I am so grateful he could receive such solid care, no matter the mishaps. Here sadly in parts of the US the hospitals are full of unvaccinated COVID patients and are having to turn away others, even ones who really need a bed.
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Hi Elizabeth, that is such a shame, especially since everyone in the USA has had the opportunity to be vaccinated. I am now fully vaccinated and so are all my family except Michael. Vaccinations only open for his age group on 1 October. He will be vaccinated, I’ve already cleared it with his pulmonologist. My dad had a pulmonary embolism in June which was during SA’s third wave of covid and our hospitals were full to capacity. The doctor could not admit my dad so I had to administer the injections at home and care for him here. It was quite an anxious time for me, but he has come through it and is well on the road to recovery.
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Wow. I didn’t know that the hospitals were full there too. My brother in law had to be sent home to be cared for by relatives too instead of getting a bed, even though he was fully vaccinated.
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Maybe they thought he was less at risk because he was vaccinated.
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This all sounds really scary! I’m glad to hear that Michael is recovering well, and I hope you’re ok now after all you’ve been through.
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Hi Clive, thank you for visiting me here. I was very frightening at the time. I felt so helpless and in the way of the nurses. There were so many all rushing around, it makes you feel very overwhelmed. He is recovering nicely now and has started to eat a bit so that is all good. Young people bounce back quickly.
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I just followed the link! It does sound frightening but it’s good to know he’s on the mend now. Take care 😊
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I hated hitting the like button. What a terrible experience for your son and for you. I know from personal experience there is absolutely nothing worse for a mother than to think you may lose your child. It sounds like he is on the road to recovery. Now your job is to take good care of you.
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Hi Bernadette, it is a terrible experience when you child isn’t breathing and cardiac arrest is a risk. The worst part is feeling helpless and in the way. Thank you for your supportive message.
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Robbie, that’s absolutely awful. It seems good that you went to a new ENT who looked properly at him to see the lack of sinus formation. Hopefully this terrible experience results in better quality of life! I’m surprised they checked now for cystic fibrosis and not when he was younger. My friends son has a rare form of this genetic disease. Sending positive thoughts your way xx
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Hi Tandy, Michael was checked for CF when he was young. He had a sweat test and it was negative so they never did further tests. Michael may have atypical CF which is rare and only effects one or two systems. Thankfully, they think his lungs are fine, and only his sinuses are deformed. The test results come in 2 weeks. Thank you, Tandy. Hugs.
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I’m relieved that his lungs seem fine. Hugs
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How dreadful, Robbie, I can’t begin to imagine how traumatic this has been for you, and for Michael. Sending hopeful, healing thoughts…take care 🤗
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Hi Chris, thank you, it has been hard. Hugs
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Any parent can imagine the stress and feelings of helplessness you must have been going through. How scary for all of you! Does Michael have any memory of waking up and removing the oxygen tube, or was he even aware he had done that?
As a guy who has had more than his share of sinus infections, I know how debilitating they can be. One of the significant changes for me in retirement is I seem to have fewer problems with them, though the smoke from all of our wildfires doesn’t help.
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Hi Pete, Michael says he doesn’t remember but he knows about it because pulling that pipe out caused a lot of problems and his throat is still very swollen and sore. He is a little more sore today because the strong medications he received in hospital are wearing off. He is fine though and will recover. Thank you for your thoughtful comment. PS air conditioning is horrible for sinus suffers so maybe that is why its improved for you?
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Blimey poor you, poor Terrance. What an ordeal. Having children is a life sentence at times. Let’s hope this one blows past.
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Hi Geoff, thank you, parenting can be tough. I hope this will be the last operation…
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You have been through SO much, Robbie. I had NO idea. Thanks for sharing this. Prayers ascend for Michael, YOU, and family.
((( )))
I am happy to hear of his recovery in the comments here.
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Hi Marian, he still has some pain, but it doing much better. Thankfully, youth is on his side. Thank you for your kind comment. Hugs.
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Sending prayers for his continued health!
And to all for refreshment because this can really take a toll on us! Whew!
❤️❤️❤️
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Hi Yvette, thank you. I must admit I was exhausted yesterday, but I am fine today.
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sending a hug
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Oh, Robbie…what an awful scary few days it must have been but it sounds like this new ENT person is on the ball…Glad to hear Michael is eating a little and the long term prognosis is good… as you said kids bounce back quickly…Look after yourself and take care…Will keep you all in my prayers and hopefully the CF test will be clear… poor lad he has been through the mill… Love and hugs xx
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HI Carol, thank you, I know you understand exactly how awful it is to be so helpless. He is doing well although he has a lot of pain. Hugs.
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Hi Robbie….yes to many times… I am pleased he is doing well and hope as each day passes the pain gets less but ultimately that the procedure makes a difference …Take care and be safe xx
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Robbie, what a terrifying ordeal for Michael and for you. He’s been so brave and no wonder he panicked. It sounds horrendous. I feel for you both; realised I was holding my breath as I was reading your post. It’s good news that the op went well in the end and I hope it makes a huge difference in his life. Big hugs to you, Robbie. Take care and wishing Michael a speedy recovery from the op and hope that he’s soon back home. Yes, everything is made so much harder because of covid. xx
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HI Annika, thank you for your kind comment. Michael is home and is doing quite well, except his throat is very painful. Hopefully that will pass and he won’t need an antibiotic. Covid has certainly made health issues and hospitalisation much more difficult. Have a lovely new week and stay well.
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Oh! Robbie never knew you went through so much and poor Michael too. He surely is a brave and courageous boy and as a mother I too can feel what you must be going through. It is completely okay if you do not read bloggers posts. You take care of Michael first and with the grace and blessings of God all will be good. Stay safe dear.
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HI Kamal, thank you for your kind and understanding comment. Michael is home and is doing much better. He has a sore throat, but I’m hoping it will pass without more medication. He is a brave boy. Have a lovely Sunday, Kamal.
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Yes he sure is a brave and courageous boy, Robbie. All will go well with God’s blessings. You too have a great week ahead. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
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My heart goes out to you Robbie, especially as a parent. Your Michael is surely quite the trooper. I’m holding you both in light. So glad he’s already on the road to recovery. Hugs xx
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Thank you, Debby. Both my sons have had chronic health problems, but thankfully, Greg seems to have outgrown his finally. I pray this procedure will make a difference for Michael.
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You have many of us in your corner Robbie. Prayers for Michael ❤
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Oh my. I’m so sorry to hear this. What a terrible experience for both of you. I’m glad to hear he is doing better. Sending hugs.
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Hi Darlene, I was horrible but he is doing better. He still can’t breathe through his nose and his throat is still painful, but he is improving every day. Your holiday looks wonderful. I’m enjoying your pictures.
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I can’t imagine how frustrating it must have been to go all these years without anyone diagnosing these problems, Robbie. Poor Greg – and you! Sure glad to hear he’s doing better.
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HI Teri, I hope that this new diagnosis and resultant operation make a difference. It would be nice to have some peace.
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Oh God Robbie! What a story.
I pray all us well forMuchael and you all. You very strong Robbie. I pray that you and the whole family continue to be so strong. The journey of life, were does it take us. With a big hug and love bella
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Hi Bella, it has been a long story but we are inching closer to a solution so that is good. Thanks for reading and your support 💖
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Great, hope it gets resolved or an answer comes soon.
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Oh, Robbie! I can’t imagine this. My heart is breaking for Michael. I am very late catching up on reading blogs, too. The start of the school has been wrought with Covid in my classroom in spite of intense cleaning and protocols. And, I have been in LA for an exciting event (tomorrow’s blog post.). As I catch up with your posts, I hope you have a Michael update. Best to you and Michael, Robbie.
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Hi Jennie, thank you for your kind comment. I was a difficult time and is an on-going saga. I am so sorry about the difficulties you are having at school. I will look out for your post tomorrow.
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Oh Robbie, I am so sorry to hear about this traumatic day for you and Michael. As it is almost three weeks later, I am hoping he is on his way to recovering. I can only imagine what all these chronic issues have been like over the years. Prayers for all of you.
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